Tuesday, June 23, 2009

I got my PICC line out today, so I'm done with IVs for now! Since there was no change, the team felt another week wouldn't do much good. I was losing so much sleep doing them at home that it was becoming a problem. I was free tonight for the first time in two weeks and hit the College World Series. Unfortunately, it rained for two hours and we ended up taking off before the game (which was delayed) even started. And to think, there was only a 30% chance of rain and the heat index was 110 degrees at 11:30 this morning... all that sunscreen was a huge waste! The funny thing was that it didn't even rain on our side of town. Welcome to the Midwest!

Monday, June 22, 2009

I went back to the ENT today, got my bi-monthly nose-picking by a professional and it is still healing well! :P I also had PFTs today and they are completely unchanged from before I went on IV antibiotics, which is disappointing. I do feel better, though, which is always a good thing. I've also decided to move back to Wichita, KS with the folks! It'll be an adjustment, but I need the rest and the free time I'll gain will help me take better care of myself... and no one cooks like Mama!

Thursday, June 11, 2009

Today marks the anniversary of when I was first listed on the double lung transplant list. I'm happy to say that I still have my own lungs and that they are still working enough to let me enjoy the times when I'm feeling well. I've been able to golf this spring and work out on a more regular basis, two things I couldn't do a year ago. I'm very optimistic about what the summer may bring!

Tuesday, June 9, 2009

Got my PICC line in today for home IVs and it went really well. Some pain, but it's less than usual. Have IVs Q12 and Q6, so at least I'll be able to get some sleep. I'll go back for PFTs in a couple weeks.

Monday, June 8, 2009

Went to the ENT today and my sinuses are continuing to heal well. Also saw the CF team and my PFTs were 28% function, 45% capacity. Despite this steadiness, I still don't feel as well as I did before the virus, so I'm going on IV antibiotics to try to get a little more back.

Saturday, June 6, 2009

Got home safely from Minneapolis and found my lungs to be unchanged from January. I think that the pulmonary rehab kept me healthy enough to battle the little virus I had over Memorial Day weekend. Lucky for me, right?

Monday, June 1, 2009

Went back to Wichita over Memorial Day weekend and must have caught a virus or something. The past week has been a little rough: low grade fevers, shortness of breath, extra congestion. Good news about my sinuses, though. The ENT says they're healing beautifully after the surgery, so that's one thing that's looking up! I go back to Minnesota at the end of the week for another 6 month transplant check up. They like to see me every 6 months while I'm waiting for new lungs to track my health and adjust my placement on the list if necessary. I've had a week of small setbacks, not being able to attend rehab last week, and so I'm hoping that my lungs haven't dipped since January, because it's been such a productive spring, I'd hate to lose ground now!