My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010
Tuesday, January 20, 2009
Minnesota went well. I'm not surprised to find that my lungs are a little worse than they were in May, but I'm feeling better than I was then. My Lung Allocation Score (the number that determines my spot on the waiting list) increased, so I'm that much closer to new lungs! I went back to the doctor yesterday and my lung function was at 27%, so I opted to go on home IV antibiotics for a few weeks beginning on Thursday. I figure that since graduating, I've got nothing better to do with my time than to take better care of myself! Now all I have to do is get motivated enough to exercise!
Sunday, January 4, 2009
I'm headed off to Minneapolis for my 6 (but really 8) month check up to keep my status current on "the list" It's going to be a long two days, especially becase we check out tomorrow morning and don't fly out until 9pm so treatments will be few and hard to come by tomorrow. Plus now that they've made flying really really difficult for people with oxygen, liquid medications, disabilities, that it will surely feel like two days from hell. I just can't wait to get back already!
I had company during a morning treatment
Zoe, sitting on the bak of my chair
I had company during a morning treatment
Zoe, sitting on the bak of my chair
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